Confliction
Some weeks later during a follow up appointme with Professor Cameron. We are surprised to recieve an apology. He claimed an error had been made, that the palbociclib was indeed proving effective. He went on to say he was somewhat baffled lstating thta when looking at Brenda’s looking medical file, identifying she had been diagnosed some 2 years before with a small low grade primary breast cancer – ductal carcinoma. He was shocked and of the opinion that would never have anticipated this type | grade of cancer to come back let alone metastisse within 2 yrs. He went on to say it was possible they were not dealing with the cancer they thought they were.
Hindsight is a great thing, but i lacked it the consultation with Professor Cameron was concluded by him stating he hadn’t been involved with Brenda back when she was first diagnosed, that his role was to treat what was presented.
Appropriate to say what is aledgedly presented is quite obvious now, they simply arent sure if the cancer has changed, before and during treatments. NHS this is not good enough. They claim there are early warnings that a cancer has changed. These early warnings are being missed every day, patient after patient, costing lives needlessly, wasting money spend money saving lives, not costing lives.
Palbociclib – continued
After consultation with Professor Cameron Brenda continues with palbociclib for approx 1 yr. It did not gross our minds to at any point to consider what DR Stanley had claimes about the efficiency of the palbociclib priotr to appointment with the professor. g unfortunatey during the 1 yr that Brenda remained on palbociclib she continued to have difficulty with the white blood cells
Disappointed
Brenda and I were very disappointed at the way her team went about reducing her treatment. Brenda and our daughter attended pharmacy in ward 1 at the western general to pick up a palbociclib prescription. On reciept they were about to exit the building, when they were approached by the pharmacist, advising Brenda an error had been made with the prescription. Brenda informed pharmacist prescription was correct. Pharmacist confirmed it was an error in relation to dosage. Brenda and our daughter clearly identified how embarrassed the pharmcist was. This issue was raised with Brenda’s team, they quite simply werent interested.
Biopsies
Sadly things did not seem to get any better. Brenda’s treatment obviously continued, but with no real sense of direction or consistency. There never at any point appeared to be an organised focused approach to Brenda’s treatment plan. Throughout Brenda’s journey we were always concerned and anxious whether the grading of the cancer had ever been accurate or had changed. On several occassions we enquired if she would, or could recieve further biopsies. We were advised many times this was not carried out routinely, also not necessary.
Contradiction
During one particular consultation with DR Hall, he informed Brenda that her liver mets were starting to show signs of activity, and that her current treatment was no longer effective. He did however say that her bone mets continued to remain stable. Brenda and I were puzzled at this as we had been advised earlier that systemic treatment would treat all areas of cancer, that if one area was responding and others advancing this would be reason for further investigation therefore to Brenda and I there appeared to be a contradiction, no explanation was given. we had no alternative, but to continue struggling to have confidence.
Reminder
I may have already written in one way or another, however I will state this again I have very mixed motives for writing, Brenda’s story. I hope no one takes offence, but like to point out Brenda’s story could be about fyou a loved one, a family friend or relative hopeful the story doesn’t come across as arrogant in any way. The intention is to highlight the mistakes that I made in relation to my incompotencies supporting Brenda against onocology. against might appear harsh, hopefully you will at the very least understand to some degree. I hope that you also understand my very biased opinion that Brenda’s story is about many things, but right up there is about NHS’s failures. I have researched . stories in connection to other patients with equally if not more horrific than Brenda’s journey.